DHEA

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DHEA

Postby purpburp » Fri Aug 17, 2007 12:54 pm

I have partial isolated ACTH deficiency and was wondering whether DHEA would be of any use to me. I do suffer from a lack of energy and my mood is very up and down and i get irritable. Do i need to ask my endo to test my DHEA levels first (if there is such a test) or do i give it a go and see if it has a positive effect.
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Re: DHEA

Postby SueM » Sat Aug 18, 2007 2:33 am

purpburp wrote:I have partial isolated ACTH deficiency and was wondering whether DHEA would be of any use to me. I do suffer from a lack of energy and my mood is very up and down and i get irritable. Do i need to ask my endo to test my DHEA levels first (if there is such a test) or do i give it a go and see if it has a positive effect.


From what you have said I doubt your endo even knows what DHEA is lol.
But your lack of energy as I told you before is due to bad diabetes control and or lack of steroid.
You need to get those 2 issues sorted before anything else. Hypo's which you say you have on a reg bases = knackered for a few hrs afterwards.
The same with being under medicated on steroids that will make you tired all the time. Bad diabetes control will also give you mood swings.
There is no magic pill to solve these 2 problems it's time and effort on your part and admiting you have a problem with your diabetes control. Untill you do this you won't get anywhere.

Sorry if I sound hard/mean to you it is not intentional but you have to wake up before you start to get serious damage from your diabetes.
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Postby purpburp » Sat Aug 18, 2007 10:44 am

Your absolutely right, im trying to run before ive learnt how to walk :lol: It just excites me that there are other people like me who know how they learnt to cope and have had my symptoms (before this site i didnt even know the problems ive had were maybe linked to my conditions and poor management)
The fact that my diabetes specialist (who also doubles as my endo ) has never even mentioned carb counting to me says it all.
I just want to get myself as healthy as possible, i want to start my own business and having a family has made me think more seriously about my conditions. Anyway thanks to you and this site ive already made vast improvements, on the diabetes front at least. My blood sugars have been near perfect for 3 days now, without hypos :D Carb counting seems to be working for me, i was even able to have some of my daughters birthday cake with no problems.
Still struggling getting started in the mornings though, even though i now take 10mg HC 30 min before getting up and my mood and irratability is still up and down like a yo-yo.
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Postby SueM » Sat Aug 18, 2007 12:31 pm

purpburp wrote:Still struggling getting started in the mornings though, even though i now take 10mg HC 30 min before getting up and my mood and irratability is still up and down like a yo-yo.


Well try taking 15 in the morning then. There is no way I would or could get out of bed for 10 HC :) As a matter of interest what is your HbA1c?
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Postby purpburp » Sun Aug 19, 2007 3:22 am

will do :)

I think my hbac1 was 8 about 9 months ago. Dont know whether thats good or bad, my endo said it was reasonable cause if i tried to get it lower i would have probably have increased hypos.
Im going to ask to see the head endo tomorrow rather than who i usually see. If that fails then im going to travel to a bigger town to see a different endo altogether like you said.
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Postby SueM » Sun Aug 19, 2007 8:12 am

purpburp wrote:will do :)

I think my hbac1 was 8 about 9 months ago. Dont know whether thats good or bad, my endo said it was reasonable cause if i tried to get it lower i would have probably have increased hypos.
Im going to ask to see the head endo tomorrow rather than who i usually see. If that fails then im going to travel to a bigger town to see a different endo altogether like you said.


No 8 is not reasonable it is a recipe for loss of limbs and blindness.
You need it to as nr as 7 as you can get it lots of type 1's have a competition to get below 6 and in the 5's but that just leads to hospital trips etc.
Basically an HbA1c of 8 is dreadful and shame on your care team for allowing it. OK so you now know that it's crap and you have no help from the diabetes team. You now have only 1 action to take learn to control your diabetes learn from the web go to the link I gave you with the forum they are the best on there. It's your condition so learn to control it or lose your sight.
Also why has the test been done 9 mths ago? Every 3 mths is the norm.
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Postby purpburp » Sun Aug 19, 2007 9:22 am

9 months ago was my last appointment. Trying to see the endo often is like making tea in a chocolate tea pot.
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Postby SueM » Sun Aug 19, 2007 10:09 am

purpburp wrote:9 months ago was my last appointment. Trying to see the endo often is like making tea in a chocolate tea pot.


Well get one done at your Gp's then that's what they are there for.
Now let me guess you don't hear the result from one visit untill the next :roll:
As your A1c is so high that answers all your questions re the tiredness being grumpy etc. No pill will fix that.
You need to aim for bs of 5 and less before meals and no more than 10 two hrs after.
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DHEA levels

Postby KathyK » Mon Aug 20, 2007 7:51 am

SueM is right. Your Doc - even your Primary or GP can test your DHEA & DHEAS levels. But it is a SPECIFIC test not normally run in a CBC or other Bloodwork so you will have to ask for it. My GP is who tested mine.

Even tho' my levels were "Clinically Within Range" I felt better upon supplementing with about 10 mg. DHEA daily, and I take 1 week off of it per mo. as do a lot of others on the Addison's websites.
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